Yep it's Mon April 27 according to my phone and i'm still a resident of Lake Norman Regional Hospital. We've become quite the regulars and been through all the nurse rotations.
I think every one is still holding on strong. The girls are being spoiled rotten by friends and family. They actually went swimming yesterday with the dogs. Under daddy's supervision:-) It was great for them all to have a little fun!
I had dialysis and blood work again today. Made it through 2hrs 25min before getting sick. Creatine is still in the 6's and hemoglobin 7.8. Other than that everything looks normal. I am not making red blood cells. A condition they are calling red cell aplasia. My bone marrow is not making just the red cells. Every thing else looks good. There are about 40 causes, with 2 really standing out. I've been on Cellcept for @ 3 years and that can cause this. Thanks to a friend of mine that just went through something similar, they are testing for b19 virus which can also cause this. I'm really hoping for something easy here. If things don't improve in the next week they want to do a bone marrow test to rule other things out.
Back to dialysis....I'm still getting sick. We've decided to try peritoneal dialysis (PD) so I'm getting a catheter put in tomorrow. I've been poked and prodded so much whats once more while we're hear.:-)
No definite on a check out date but I'm thinking Wednesday (this week).
Well getting ready to get a pint of blood........yea it looks as disgusting as it sounds, but we do what we have to do:-)
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