Monday, April 20, 2009

Dialysis beins......

Well it's been a while, things have been going along. Met with CMC in March, we are officially on the Transplant wait list. My brother is not a match for me, but he is still a donor candidate. They are continueing to test him to see if he can donate to someone else. Maybe we can make a 4 way donor swap and help save someone else! We have friends continueing to get tested and we are beyond grateful for everyone!
Tuesday (April 14th) I had a routine nephologist appoitment. I was not feeling well because my hemo was low. Lab work was done. By Thursday (April 16) doc was calling. It was time to start dialysis. My kidney function was about 6%. As most of you know, we'd been trying to hold off until my arm was really ready. We couldnt wait any longer. The toxins were too high and my numbers were not good. We decided to go to hosipital on Friday for in-patient dialysis thinking the nurses were top notch. Our plan was to be there Friday/Saturday then come home. Well as my 5 year old often reminds me, I don't do good sticking to a plan. LOL It's Monday and I'm still hanging out.
So back to Friday, we checked in Friday morning. Lunch time they came and got me for dialysis. The best dialysis nurses around tried for an hour to use my AV Fistula. Chris stood by my side letting me cut the circulation in his hand off squeezing because it hurt. My arm was not ready for the blood flow. IT HURT. It's not like the movies they show you. lol. So next step was to get a cathader put in my neck to start dialysis that way. It is temporary, we will still be able to use the arm, but for now the catherder is the best option.
So on to Saturday. All I remember is trying dialysis, getting sick. Taking meds and getting sick and sleeping.
Sunday was a bit better. Tried dialysis, was able to run for about 1.5 hrs before feeling sick and stopping. Was able to walk around and did not get sick all day. Stayed awake most of the day.
So now it's Monday. Went to dialysis this morning. Felt ok for a while. Ran for 1.5 hrs, started getting a head ache and vomiting so they stopped it. I felt better after that. Came back to the room where Chris helped me shower and wash my hair. That was great. Feeling light headed but not really sick to my stomach. Still can't eat much. Drinking some Nepro by Ensure for vitamins and calories.
Not clear on what comes next. Obviously we'll be doing dialysis 3 days a week now. I'm not sure when I'll get to go home. We're thinking Tuesday or Wednesday. Thanks for all the prayers, well wishes, visits and flowers. We need all the support we can get and everyone has been wonderful.
I apologize for all the typos and misspellings, still not thinking clearly:-)

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